• May 4th Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • Parents of VHLers: Navigating Care, Emotions, and Growing Independence

    Zoom / Online

    Date & Time: May 6, 2026 at 6:00 PM ET Location: Virtual (Zoom) Registration link: https://us02web.zoom.us/meeting/register/8C0h7JYFRKmXUjoeB184BA#/   Parenting a child with VHL comes with unique challenges, from balancing complex medical...

    Free
  • May 13th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

    Free
  • June 1st Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • June 10th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

    Free
  • July 6th Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • July 8th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

    Free
  • VHL Veterans Panel

      Join the VHL Alliance on Thursday, July 30, at 7:00 p.m. ET for the VHL Veterans Panel.   This webinar will feature longtime members of the VHL community sharing...

    Free
  • August 3rd Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • Family Weekend 2026

    Kimpton Everly Hotel 1800 Argyle Ave, Los Angeles, United States

    The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with...

    $50
  • August 12th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

    Free