July 8th Low/No Vision Call
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
Free
12 events found.
Events
- Zoom / Online
VHL Veterans Panel
Join the VHL Alliance on Thursday, July 30, at 7:00 p.m. ET for the VHL Veterans Panel. This webinar will feature longtime members of the VHL community sharing...
Free
August 3rd Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
Family Weekend 2026
Kimpton Everly Hotel 1800 Argyle Ave, Los Angeles, United StatesThe VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with...
$50
August 12th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
Free
September 9th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Annie Lapidus, a blind yoga instructor with VHL, will join us to talk about meditation...
Free
September 14th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. *Please note that this call has been pushed back one week due to the holiday! All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We...
Free
October 5th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
October 14h Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: How life as a blind person is different based on the age at which we...
Free
November 2nd Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
VHL Alliance Medical Symposium
Hyatt Regency Boston/Cambridge 575 Memorial Drive, Cambridge, MA, United StatesAdvancing Research, Treatment, and Care for Von Hippel-Lindau Disease Join leading researchers, clinicians, and advocates for groundbreaking discussions on VHL disease management and innovation. The 17th International VHL Medical Symposium, hosted by the VHL Alliance and Mass General Brigham, will bring scientists, clinicians, and advocates together for two days of collaboration, idea exchange, and thought leadership. This...
November 18th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: We...
Free