Calendar of Events
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May Patient/Caregiver Call
May Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
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May Low/No Vision Call
May Low/No Vision Call
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Decision Fatigue" All are welcome to join—whether you have questions or just want to...
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May Parents of VHL Patients Call
May Parents of VHL Patients Call
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...
