Supporting Mental Health in the VHL Community
January 13, 2025
Supporting Mental Health in the VHL CommunityAs we kick off the new year, we’re here to remind you of the
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Exciting Initiatives for 2025: Advancing Care and Support for the VHL Community
December 17, 2024
As we enter 2025, the VHL Alliance is proud to unveil a series of new initiatives aimed at advancing care,
3 Things You Might Have Missed at the VHL Medical Symposium in Milan
November 19, 2024
The 16th International VHL Medical Symposium recently took place in Milan, Italy. More than 200 scientists, clinicians, and patient advocates
5 Ways To Fight Scanxiety
October 15, 2024
Thank you to our guest contributor this month, Tessa Whitten! There are a few days of the year that I
Four Exciting Developments in Using Belzutifan to Treat VHL patients
September 23, 2024
At the VHL Alliance, we are committed to bringing you the latest developments in research and treatment options for Von
Four Ways To Reduce The Cost of your VHL Care
August 13, 2024
Here at the VHL Alliance, it’s clear that the financial burden of von Hippel-Lindau continues to be a top priority
Awareness Month 2024 – Ian’s Story
May 28, 2024
“I faced a choice—crumble over or get back up.” – Ian Phillips, VHL Community Member Some people, for varying
Awareness Month | Isaiah, VHL Ninja Warrior
May 15, 2023
“I give it everything I’ve got. I make the most of it.” – Isaiah Lee Sometimes something remarkable happens in
May Awareness Month 2023 | Jacq’s Story
May 2, 2023
We had the opportunity to speak with a few of our community members to share their stories during VHL Awareness
May Awareness Month 2023 | Stacy’s Story
April 26, 2023
Today marks the first day of VHL Awareness month. Each May, we use this time as a community to connect,