No one likes conflict. Having VHL can feel very stressful and that can strain relationships, erode healthy communication, and increase the likelihood of conflict. What if you could navigate tough conversations with greater expertise or avoid having conflict? Join this session to discover research-based tools that you can implement immediately to improve...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD! A few reasons why you should consider joining us: Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts...
The VHL Alliance proudly presents the VHL Veterans Panel! Prepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience. Date: November 16th, 2023Time: 7 pm ESTLocation: Zoom. What to Expect: ✨ Courageous Stories:...
Date & Time: Nov 14th, 6:30 pm EST Location: Zoom (Link to be provided upon registration) Join us for an informative webinar featuring renowned VHL researcher Dr. Othon Iliopoulos as he delves into the latest advancements in understanding Von Hippel-Lindau (VHL) disease and the role of HIF2a inhibitors in treatment. Dr....
Managing Von Hippel-Lindau disease (VHL) requires more than treating individual tumors—it demands a carefully coordinated approach to care. Because VHL can affect multiple organ systems, patients benefit most when their care is managed by a multidisciplinary team that communicates and collaborates effectively. Join the VHL Alliance for our upcoming webinar, The Importance of Coordinated...
Únase a la Alianza VHL para un seminario web informativo y atractivo el 13 de abril a las 6:00 p.m. (ET), presentado por el reconocido investigador y médico James Brugarolas, M.D., Ph.D. En esta sesión, el Dr. Brugarolas compartirá los últimos avances en la investigación de la enfermedad de Von Hippel-Lindau (VHL), incluyendo...
Date & Time: May 6, 2026 at 6:00 PM ET Location: Virtual (Zoom) Registration link: https://us02web.zoom.us/meeting/register/8C0h7JYFRKmXUjoeB184BA#/ Parenting a child with VHL comes with unique challenges, from balancing complex medical care to managing uncertainty and supporting your child’s emotional well-being at every stage. This webinar is designed specifically for parents and caregivers who are navigating...