VHL Patient/Caregiver Call

Zoom / Online

First Monday of every month (Delayed 1 week in Jan. due to New Years holiday) All are welcome to join—whether you have questions or just want to find out more....

Low/No Vision Monthly Call

Zoom / Online

Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of...

Parents of VHL Patients Call

Zoom / Online

Third Monday of every other month (Delayed 1 week in Jan. due to MLK Day) Please join us on the third Monday every other month to discuss how we can...

February VHL Patient/Caregiver Call

Zoom / Online

First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...

February Low/No Vision Monthly Call

Zoom / Online

Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of...

Navigating Tough Conversations Workshop

Zoom / Online

  No one likes conflict. Having VHL can feel very stressful and that can strain relationships, erode healthy communication, and increase the likelihood of conflict.   What if you could...

2023 Julie Flynn HOPE Retreat for Young Adults

Washington DC Washington DC, DC, United States

  Are you a young adult with VHL? If so, join other young adults for a weekend of fun and information! We're excited to get together in person after our digital...

$100

March VHL Patient/Caregiver Call

Zoom / Online

First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...

March Low/No Vision Call

Zoom / Online

Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of...