• February VHL Patient/Caregiver Call

    Zoom / Online

    First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...

  • February Low/No Vision Monthly Call

    Zoom / Online

    Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of...

  • Navigating Tough Conversations Workshop

    Zoom / Online

      No one likes conflict. Having VHL can feel very stressful and that can strain relationships, erode healthy communication, and increase the likelihood of conflict.   What if you could...

  • 2023 Julie Flynn HOPE Retreat for Young Adults

    Washington DC Washington DC, DC, United States

      Are you a young adult with VHL? If so, join other young adults for a weekend of fun and information! We're excited to get together in person after our digital...

    $100
  • March VHL Patient/Caregiver Call

    Zoom / Online

    First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...

  • March Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of...

  • March Parents of VHL Patients Call

    Zoom / Online

    Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. All parents of...