August Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

August Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

Free

September Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

September Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

Free

October Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

October Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

Free

November Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

November Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

Free

Webinar Series: The Importance of Coordinated Care in Addressing VHL

Zoom / Online

Managing Von Hippel-Lindau disease (VHL) requires more than treating individual tumors—it demands a carefully coordinated approach to care. Because VHL can affect multiple organ systems, patients benefit most when their...

Free

December Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

VHL Connect: Atlanta

Hilton Millennium Center 2301 Sullivan Rd, College Park, GA, United States

When: December 6, 2025 | 8:30 AM – 2:00 PM ET Where: Hilton Millennium Center, Atlanta 2301 Sullivan Rd, College Park, GA 30337 Cost: $10 (includes lunch)   Join the...

$10