**Please note: You must register with the registration link below in order to attend!** Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts. UT Southwestern will...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "How do we maintain our physical health with VHL and vision loss?" All are...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "Find out how what you believe about VHL and its impact on you can increase or decrease your child’s health outcomes and what you can...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "How does blindness add to mental health challenges? What practices, courses, books, etc. have you...
Join the leading VHL researchers, physicians, and experts in Milan! What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring scientists, clinicians and advocates together for two days of collaboration, idea exchange, and thought leadership. Where: UniSR Campus Milano Olgettina (Via Olgettina 58, Milan) on...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Preparing for natural disasters with vision impairment." All are welcome to join—whether you have...
Date & Time: Nov 14th, 6:30 pm EST Location: Zoom (Link to be provided upon registration) Join us for an informative webinar featuring renowned VHL researcher Dr. Othon Iliopoulos as he delves into the latest advancements in understanding Von Hippel-Lindau (VHL) disease and the role of HIF2a inhibitors in treatment. Dr....
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "Increase your wellbeing by increasing your sense of happiness despite extremely stressful circumstances." All parents of VHL patients are welcome to join—whether you have...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
