July Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
12 events found.
Events
- Zoom / Online
July Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Feelings of inclusion. Are there things that you do to make sure that you feel...
Free
Family Weekend 2025 | Ann Arbor, Michigan
FeaturedCan you join us for VHL Family Weekend 2025? When: August 1-3, 2025 Where: University of Michigan, Ann Arbor, MI The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with others impacted by...
$50
August Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
August Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Techniques, hacks, and shortcuts we’ve come up with to make every day tasks easier. ...
Free
September Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
September Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: How do you express your feelings? All are welcome to join—whether you have questions...
Free
October Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
October Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: What is support and who are our supporters? All are welcome to join—whether you...
Free
November Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
November Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Confidence: when do we feel it, and when do we feel the lack of it?...
Free
Webinar Series: The Importance of Coordinated Care in Addressing VHL
Zoom / OnlineManaging Von Hippel-Lindau disease (VHL) requires more than treating individual tumors—it demands a carefully coordinated approach to care. Because VHL can affect multiple organ systems, patients benefit most when their care is managed by a multidisciplinary team that communicates and collaborates effectively. Join the VHL Alliance for our upcoming webinar, The Importance of Coordinated...
Free