• December Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

    Free
  • VHL Connect: Atlanta

    Hilton Millennium Center 2301 Sullivan Rd, College Park, GA, United States

    When: December 6, 2025 | 8:30 AM – 2:00 PM ET Where: Hilton Millennium Center, Atlanta 2301 Sullivan Rd, College Park, GA 30337 Cost: $10 (includes lunch)   Join the...

    $10
  • December Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

    Free
  • January Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • January Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: Bucket lists, goals, achievements, accomplishments, etc.   All are welcome to join—whether you have questions...

    Free
  • February 2nd Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

    Free
  • Feb 11th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: What blindness or VHL related items would it be critical for you to pack in...

    Free
  • March 2nd Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • March 11th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: Household management: How do you do Home upkeep and maintenance? If you do it yourself,...

    Free
  • VHL Connect | Seattle

      Join us for VHL Connect: Seattle on March 21st, 2026!   Date: March 21st, 2026 Cost: $10 Location: 255 South King Street, 18th floor, Seattle, WA, 98104. We will be in Slalom Hawk Tower on the 18th floor, which is where the reception area is located. Note that there is a hotel connected to...

    $10
  • April 6th Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • April 8th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: How do you strike the balance between asking for what you need and proving that...

    Free