VHL Connect | MD Anderson
MD Anderson 1515 Holcombe Blvd., Houston, TX, United States
Free
12 events found.
May Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
May Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Decision Fatigue" All are welcome to join—whether you have questions or just want to...
VHL Connect | Penn Medicine
Penn Medicine 3400 Civic Center Blvd, Philadelphia, PA, United States
Free
May Parents of VHL Patients Call
Zoom / OnlineThird Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...
VHL Connect | Huntsman Cancer Institute
Huntsman Cancer Institute 1950 Circle of Hope, Salt Lake City, UT, United States
Free
June Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Charla Informativa con Dr. Alejandro Sanchez sobre Von Hippel-Lindau, con Preguntas y Respuestas | VHL Informational Session and Q&A with Dr. Alejandro Sanchez [IN SPANISH]
English description to follow! ¡Hola, miembros de la comunidad de VHLA! Nos complace anunciar que la Alianza VHL y el Dr. Alejandro Sánchez, del Instituto Oncológico Huntsman, ofrecerán un seminario web el 9 de junio de 2025 a las 19:00 h (hora del este). El Dr. Sánchez abordará todos los temas relacionados con...
Free
June Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "What are your worries related to VHL/vision loss and how do you handle them?" ...
VHL Connect | Mass General
Mass General 185 Cambridge St, Boston, MA, United States
Free
July Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
July Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Feelings of inclusion. Are there things that you do to make sure that you feel...
Free