June Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
12 events found.
Events
- Zoom / Online
Charla Informativa con Dr. Alejandro Sanchez sobre Von Hippel-Lindau, con Preguntas y Respuestas | VHL Informational Session and Q&A with Dr. Alejandro Sanchez [IN SPANISH]
English description to follow! ¡Hola, miembros de la comunidad de VHLA! Nos complace anunciar que la Alianza VHL y el Dr. Alejandro Sánchez, del Instituto Oncológico Huntsman, ofrecerán un seminario web el 9 de junio de 2025 a las 19:00 h (hora del este). El Dr. Sánchez abordará todos los temas relacionados con...
Free
June Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "What are your worries related to VHL/vision loss and how do you handle them?" ...
VHL Connect | Mass General
Mass General 185 Cambridge St, Boston, MA, United StatesFree
July Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
July Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Feelings of inclusion. Are there things that you do to make sure that you feel...
Free
Family Weekend 2025 | Ann Arbor, Michigan
FeaturedCan you join us for VHL Family Weekend 2025? When: August 1-3, 2025 Where: University of Michigan, Ann Arbor, MI The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with others impacted by...
$50
August Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
August Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Techniques, hacks, and shortcuts we’ve come up with to make every day tasks easier. ...
Free
September Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
September Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: How do you express your feelings? All are welcome to join—whether you have questions...
Free
October Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free