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  • 2023 Julie Flynn HOPE Retreat for Young Adults

    Washington DC Washington DC, DC, United States

      Are you a young adult with VHL? If so, join other young adults for a weekend of fun and information! We're excited to get together in person after our digital...

    $100

  • 2023 Annual VHL Family Weekend

    Featured
    Vanderbilt University 2555 West End Avenue, Nashville, TN, United States

    The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate...

  • Family Weekend Fun Walk / Run

    Join us in Nashville for a Family Friendly fun walk!   On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness...

  • VHL Alliance 30th Anniversary Gala

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    Franklin Institute 222 North 20th Street, Philadelphia, PA, United States

    Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! We are making significant progress towards a cure for von Hippel Lindau and have many successes and...

    $300

  • Young Adult Retreat 2024 | VHL Alliance

    Featured

    Join us for an empowering and enriching experience at the 2024 Young Adult Retreat!   Date: February 23-25, 2024 Timing: Events will start at 7 pm on Feb 23rd and...

    $75

  • Family Weekend 2024 | Dallas, TX

    UT Southwestern 5201 Harry Hines Blvd, Dallas, TX, United States

    **Please note: You must register with the registration link below in order to attend!** Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself...

    $50

  • 16th International VHL Medical Symposium | Milan, Italy

    Join the leading VHL researchers, physicians, and experts in Milan! What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring...

  • VHL Alliance Young Adult Retreat | Phoenix, AZ

    Featured

      Calling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix, Arizona, from February 28th to March 2nd, 2025, for the Young Adult Retreat hosted by the...

    $75