The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate...
Join us in Nashville for a Family Friendly fun walk! On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness...
Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! We are making significant progress towards a cure for von Hippel Lindau and have many successes and...
Join us for an empowering and enriching experience at the 2024 Young Adult Retreat! Date: February 23-25, 2024 Timing: Events will start at 7 pm on Feb 23rd and...
**Please note: You must register with the registration link below in order to attend!** Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself...
Join the leading VHL researchers, physicians, and experts in Milan! What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring...
Calling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix, Arizona, from February 28th to March 2nd, 2025, for the Young Adult Retreat hosted by the...
Can you join us for VHL Family Weekend 2025? When: August 1-3, 2025 Where: University of Michigan, Ann Arbor, MI The VHL Alliance invites you to join us...